Built on patient experience

Patient in Focus is an international, nonprofit disease neutral patient organization built by patients. We are disease neutral because all patients experience the same emotions and challenges across all diagnoses. We understand patients because we are patients.

We are not your average organization.

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Meet Lisbeth

We collaborate with patients and professionals regarding patient understanding, engagement and education for a better outcome in projects and research, while increasing the patient community to create a better quality of life for everyone.

  • We generate value and knowledge for patients and professionals.

  • We feel what you cannot read yourself in the books.

  • Your guide to the patient world.

  • Lisbeth has Arthritis – Seronegative Rheumatoid Arthritis.

Meet Charlotta

Patients have two essential roles in clinical trials: Clinical trial participation and Patient engagement. Patient in Focus is your patient recruitment partner for clinical trials, studies, and patient engagements.

  • Patients have essential roles in clinical trials.

  • We are the bridge between patients’ experience and the professional.

  • We create active participation in society.

  • Charlotta has Lupus – Systemic lupus erythematosus (SLE)

Why engage patients?

To understand the diverse needs of patients and learn about their unique experiences, knowledge and perspectives that can contribute to essential evidence for industry-led research and development, you must engage patients. Patient contribution can confirm aim, ensure product/service usability, and solve access challenges.

Patients recruitment

We build relationships on trust and real connections and work with all types of patients and their relatives and caregivers.

We are not a typical recruitment agency or registry without real contact. We pride ourselves on having personal interactions with our patients. Patient engagement is our number one priority.

We undestands patients

We don’t just send out an email, we talk to people. Human interactions generate relationships. Patients trust patients – there is a mutual understanding you can’t get when using an ordinary recruitment agency. We protect the patients first and foremost by acting as the patient-client liaison to ensure patient comfort and optimal client interactions.

Patient in Focus is an international, nonprofit disease neutral patient organization built by patients. Disease neutral because patients experience the same emotions and challenges across all diagnoses. We understand patients because we are patients.

Patient in Focus is an international, nonprofit disease neutral patient organization built by patients. Disease neutral because patients experience the same emotions and challenges across all diagnoses. We understand patients because we are patients.

Patient in Focus assists patients in leading lives of quality by providing them with information and tools for success. We include patients in patient engagements where the patient perspective can be of great value and help them find clinical trials they can join.

We are the liaisons between patients and companies, ensuring that our patients have all the information they need without the administrative burden.

In our team we have our Steering Group  and Board of Directors to help keep the Patient in Focus team on the right track according to our mission and vision.

Our organizations

Professional says …

“Thank you very much for your presentation and excellent roundtable in spite of all your health issues, and I know this required so much effort and stamina from your side.

This was a really impactful event, and we have been just chatting with the organizer team in the background, how impressed and speechless we are.

We got the message.”

Ildikó Herenyik, Medical Innovation Manager, GE Healthcare

“Super service – I sent some dates, and then Patient in Focus managed the rest, so I could hold a focus group interview with 3 patients. The patients were ready to join in and super sweet to work with. It can be hard for researchers to make contact with patients, but it went so easily through Patient in Focus.

Let’s hope this association makes patient involvement easier and more prevalent!”

Trine Graabæk Hansen, University of Southern Denmark

“Patient in Focus cleared everything when I did an interview with 11 patients. The patients were ready to participate, committed and very sweet to work with.

It can be difficult for professionals to create the right contact for patients, it is incredibly easy through Patient In Focus.

I definitely recommend Patient in Focus again.”

www.patientinfocus.org, Nonprofit disease neutral organization

CONTACT US

Monday – Friday 10:00 – 16:00
Friday By appointment
Weekend  By appointment

PARTNERS

Read more about our partners an collaborations here

Patient access
Patient access isn’t a problem, it is a huge problem.

To reach the targeted number of patients for clinical trials and studies, you must have a large reach.

We make the unattainable patients, attainable.

Mission – for patients
Patient in Focus improves the living conditions for patients through

Knowledge – Tools – and education

so that patients can lead a life of quality despite illness and disability.

Mission – for professionals
Patient in Focus helps other patients get involved with patient engagement, research etc. and thereby give the professionals the knowledge they lack.