Knowledge – Access – Method
Why is it important/valuable to think of your projects from a patient’s perspective? Patient in Focus has a keen interest in that very question, and offers three key pillars:
Knowledge – Access – Method
Patient in Focus assists a variety of organizations with the knowledge, access, and coordination of early patient engagement. As experienced counselors, we and our patients will inspire you to make decisions with an understanding of the patients’ perspectives to a life with illness.
We understand the patient because we are patients.
As patients, we know that the patient’s perspective and experience can have great impact when they are incorporated into the project. The sooner the better – it is never too soon to involve and engage patients! It may sound like common knowledge to involve the very people that the project will benefit, however this is often not the case. When patient’s insights and knowledge is heard, it is evident that solutions are found, and often it’s solutions that would never have been thought of originally.
For example, if the standard of care is a blue pill with serious side effects, then it does not help that you develop a preventative pill if it is also blue. Or if you want to develop a treatment for rashes for a patient group that is much more concerned about hair loss. Or maybe a clinical trial requires too much of the patients, making recruitment impossible.
Millions of dollars have been spent on unsustainable strategy (from the patient’s perspective), inadequate recruitment as well as failed attempts and projects. If these costs are reduced right from the start, all patients benefit in the form of more treatment options, faster market approval, better treatment and lower prices.
Patent in Focus and our patients can provide you with the knowledge you need so that your project becomes a success right from the start.
Access 1 of 2
Lack of access to patients is not just a problem. It is an enormous problem! Too often, professional recruitment is brief and impersonal. Patients often feel nervous and overlooked in the process.
At Patient in Focus, we take the time to find the right people. We are aware of the importance of a safe environment which is why it’s us as patients who recruit other patients. We answer as many questions as we can – patient to patient – to give the patients the peace of mind that a professional often is unable to achieve. Our patients wish to share their perspective and knowledge which in turn ensures a positive impact on any project.
Patient in Focus is a disease-neutral, non-profit organization; therefore, we have a large patient reach and members with over 120 different diagnoses. We have access to 21,000 patients worldwide and work with all types of diagnoses.
Dependent on your project and its needs, we choose patients with no experience (lay patients) as well as patient experts.
Access 2 of 2
Patient recruitment is necessary in all types of patient engagement including Research and Development. These are areas that will benefit from patient recruitment:
- Clinical trials
- Study design and evaluation
- Questionnaires and surveys
- Other research and studies
- Patient / user / citizen council
- Patient interview (individual)
- Group interview
- Focus groups and advisory boards
- Facilitation (of focus groups, panels, etc.)
- Case studies
- Patient representation
- Patient influencer marketing
- Video / film
… and much much more…
Patient in Focus appreciates working with you. We recruit for and coordinate your patient engagement projects to ensure that you get the necessary knowledge and that patients feel safe in one personalized, trustworthy, patient-to-patient package.
Along the way, we coordinate equal partnerships between YOU and the patients, with the aim of achieving earlier patient engagement and thereby strengthening the complex decision-making processes. This can include clinical trials, focus groups or general patient engagement in workshops, feedback meetings and interviews.
How to engage and when to engage patients in your project?